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I just need a bit of support...... Options
jewelsh
#61 Posted : Sunday, February 16, 2014 10:43:48 AM Quote
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Joined: 9/15/2013
Posts: 125
Hi Gogs
Just catching up with the last few posts as have been in hospital for a few days. I'm so glad you are feeling a little bit better and not so far down that deep hole .
Keep taking those small steps and please don't worry if you have a down day -they will get less as you get better. Talk to that lovely friend and don't be afraid to be honest !!

Keep looking for the sunshine, elusive as it seems

Lots of hugs

Julie x
gogs
#62 Posted : Sunday, February 16, 2014 12:23:31 PM Quote
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Location: Cheshire
Hi Julie and everyone,

I've just realised what a selfish illness depression is and I feel very ashamed of myself.
Julie tells me she's been in hospital for a few days, all of you must be coping with some problem, big or small, but I
am so sucked into my own needs I've not been aware of everyone around me.

Please accept my heart felt apology, I wont be always like this. This is one of those 'drop of the hat' moments when
I suddenly hate myself for my insensitivities to the needs of others. It does however remind me that I am a very long
way from OK.

Whatever difficulties you all may have I sincerely hope they are manageable or at least you have in place support I didn't have.

Thank you everyone.
Gogs xx

jewelsh
#63 Posted : Sunday, February 16, 2014 2:16:23 PM Quote
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Posts: 125
Gogs!!
PLEASE please don't feel ashamed or selfish or feel the need to apologise for the way you are feeling! You have so much on your plate at the moment it is not surprising you have been feeling the way you do.
Yes, we all have issues and problems - that's how we ended up here! And that's why you should feel free to be totally honest and ask for the support that you have so desperately needed to find. And I know you are not insensitive to the needs of others so please try not to feel that way. We connect to each other through these pages in a very special way so please keep on being honest and that enables us all to be honest too! We know you will not always feel this way and are here to support you for as long as it takes to get back to where you need and want to be.

Sending a BIGGER hug
Julie x


suzanne_p
#64 Posted : Monday, February 17, 2014 8:58:46 AM Quote
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Joined: 8/25/2010
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Location: Buckinghamshire
hi Gogs,

don't ever apologise,

i think depression is a very lonely place to be, and very self absorbing .. you are a very generous Lady who would help others at the drop of a hat, we all hope that you can begin to come out of this soon.

hope to hear how you are soon,

Suzanne x
gogs
#65 Posted : Monday, February 17, 2014 1:55:35 PM Quote
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Joined: 10/20/2012
Posts: 304
Location: Cheshire
Hi everyone,

I may not be great but I am aware of a slight change in me - a positive change, and a lot of it is thanks to all of youSmile.

Age UK phoned this morning and they are coming on Wednesday to see what they can offer in the way of help to me.
My husband is being taken to a communication group tomorrow but he's showing extreme reluctance. I hope he goes, it really
will help me by giving me a few hours to myself, but sadly he can be very stubborn and argumentative.
I've also agreed to go and have some bloods done tomorrow - still under duress though!

I'm trying to keep my mind occupied so this morning I cleared out one of the top cupboards over the wardrobes. The job was
much bigger and strenuous than I envisaged but it was a treasure trove of stuff I'd forgotten all about - a whole suitcase full
of all my art materials from years ago, drawings, paintings, brushes, boards, paints and carron dauche (spelling), the paints etc. are now pretty useless and dried up,
ice skates that belonged to me and our three little boys (they were once!).
Wonderful memories of time gone. When I stored all those items I was much younger and perfectly fit.

I keep saying thank you to you all and I really do mean it. Just being able to 'look in' and see that someone has taken the time to respond to me
is unbelievably valuable.

Love Gogs xxx
SueB
#66 Posted : Monday, February 17, 2014 2:05:24 PM Quote
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Joined: 8/1/2010
Posts: 255
Location: hampshire
Hi Gogs
So glad things are a bit more positive for you. You are a very brave lady who has so much to deal with. Do you ever find time to paint nowadays. I recently started watercolour classes. It is so theraputic, even though what I produce is for private view onlyLOL
Sue x
Kathleen_C
#67 Posted : Monday, February 17, 2014 2:12:13 PM Quote
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Posts: 1,689
Location: Durham
Hi Gogs,

You just keep looking in, and we`ll keep responding!!

I hope the meeting with Age Concern goes well - whenever we`ve had dealings with them they do seem to try to help. I hope your husband gets to his communication group too, so you can have those precious few hours to yourself. While you`re "on a roll," just get those bloods done! A necessary evil I say, since they have all sorts of bother to get any blood from me so my blood-letting is never straightforward.

Well done for clearing your cupboard - that`s what we should be doing here, though having spent weeks clearing Dad`s house after he died I can`t face starting here yet. I had a chuckle at you finding all that stuff though - we were the same when we did Dad`s house. He`d kept everything - school reports etc. from long ago, so my sister and I spent ages reminiscing. I have a "Captain`s Chest" on our landing, which our two little grandsons call the Treasure Chest. Jacob,( 9 ) asked to see inside it, and sat for ages enthralled at photos of his Dad, his Uncle, Nick & I , and various family members over the years. He & Ethan ( 7 tomorrow ) were particularly interested in the sporting pics. After every photo had been inspected and commented on, Jacob made a very perceptive remark : " Well, Gran, it really is a Treasure Chest, isn`t it?"

Might you be tempted to get your watercolours out? I try to write a bit each day - mainly as a kind of journal for my grandsons when they`re older, but it`s relaxing and I enjoy it.

Take care,

Kathleen x

Angiecha
#68 Posted : Monday, February 17, 2014 2:35:59 PM Quote
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Joined: 9/5/2010
Posts: 185
Location: Lowestoft, Suffolk
Hi Gogs

Sounds like things are coming together bit by bit, and as an observer I think this is great. Despite still being low, you seem to have come an awful long way already so give yourself some credit.

I'm so jealous that you can paint. I don't have an artistic bone in my body yet I adore oil paintings. My only success I ever had in art is a pencil drawing of a spotted bird feather. It was a tongue poking out the side of my mouth enterprise as a youngster. I got a certificate of merit for it!

Now, you should know that any cleaning of cupboards is never as simple as it seems! Always hard work but I believe it's really therapeutic (I cleaned my fridge out on Friday and it looked lovely).

Fingers crossed (in thought) that hubby goes off to the communications meeting.

Will you start painting again do you think? Could be really relaxing and helpful, one of those 'can do' things that Paul mentioned.

Keep in touch with us

Angie X
Be yourself - everyone else is taken. XX
lisamcb
#69 Posted : Monday, February 17, 2014 3:30:50 PM Quote
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Posts: 144
Location: Dumfries
Hi Gogs

I am glad that people are coming to speak to you and hope you get the support in place.

Please keep dipping in with how you are feeling, what you have been doing. I think you have had so much to deal with but you have put others before yourself.

Take care.

Lisa xx
anne_t
#70 Posted : Monday, February 17, 2014 5:19:02 PM Quote
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Joined: 12/3/2009
Posts: 302
Location: Rainham Kent
HiGogs,
Spring Cleaning already!!!!!
Hope all goes well this week.
As others have said, NEVER,NEVER,NEVER apologise. You have shown a lot of courage sharing
your feelings with us. I do hope most of the days are positive but do take one day at a time
Love Anne
gogs
#71 Posted : Tuesday, February 18, 2014 5:28:33 PM Quote
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Location: Cheshire
Today's been a grim day - I've hit the buffers.

Went for the blood test as I promised but then felt angry - why should I do this or that just
to please all these people who are ordering my life about.

Also fed up with the pain in my neck. This has been going on since October, the disc in my back resolved really
quickly, so it can't be just stress alone or that wouldn't have gone away. Even the most recent letter from the cons. says
she is surprised I'm still having so much pain after so much intervention - WHAT THE HELL DOES THAT MEAN!!!!
Gogs
Paul Barrett
#72 Posted : Tuesday, February 18, 2014 6:04:39 PM Quote
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Location: Hexham
Hi Gogs

I'm sorry to hear you have hit the buffers after some more positive days. With regards to your neck I suspect the reason you are suffering so much is that it's a very complex area. Tell me:

- does the pain extend from your neck up into the back of your head?
- Does it wrap around your head from the back?
- Do you have pains down your arms and into your hands / fingers?
- Is the tendon that runs around the inner track of your elbow sore?
- Are your shoulders sore?

Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
gogs
#73 Posted : Tuesday, February 18, 2014 7:08:08 PM Quote
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Location: Cheshire
Hi Paul,

I'll try to answer your question in the same order

1) -the swollen areas are on the left side and extend up my head to the back of my ear
2) It doesn't wrap around my head
3) No pain in my left arm put I do have tingling in my fingers
4) No pain in my left elbow
5) yes, my shoulders are tender..

Gogs
Paul Barrett
#74 Posted : Tuesday, February 18, 2014 9:53:02 PM Quote
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Posts: 703
Location: Hexham
Hi Gogs

Now I know that you believe that the symptoms are RA based but so many of those symptoms correspond to what I had that I am wondering if you have a bit of osteo in there too. I fully accept that steroids are not effective on osteo but if you have secondary inflammation caused by the osteo then they would be effective on that and you would feel some reduction but not total relief because it's not the primary cause.

The tingling in your fingers could be prolapsed discs impinging on the brachial nerves. The pain up behind your ear could be muscular as you try to protect your neck.

I really understand that you don't need one more thing to cope with right now, but also I believe it's worth following up on to see if there is a combination of OA and RA that needs untangling. There was for me and I'd hate to see you suffering when you don't need to
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
gogs
#75 Posted : Wednesday, February 19, 2014 11:04:57 PM Quote
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Location: Cheshire
Thanks Paul for your time.

Gogs
Paul Barrett
#76 Posted : Thursday, February 20, 2014 9:11:01 AM Quote
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Location: Hexham
Take care. Thinking of you.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Ailsa-H
#77 Posted : Thursday, February 20, 2014 8:46:11 PM Quote
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Joined: 3/4/2010
Posts: 576
hi Gogs - how've you been today? Hope you've had a bit of relief from the pain and had a little sunshine too. xx Ailsa
gogs
#78 Posted : Thursday, February 20, 2014 10:53:16 PM Quote
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Location: Cheshire
Thanks for asking Ailsa.

The past two days have not been good. I'm full of a Petechial rash - arms, legs, chest. It's most probably the drugs but looks a mess.
I still get the feeling of wanting to stop everything, I just can't come to terms with it.

My husbands needs are now very limited, happy to stay in the house, not bothered if he never see's anyone (as long as his wife's around to care for him),
doesn't want to go anywhere. The world has become narrow. I do understand from the dementia course I did that the area of his brain affected means he
is not motivated in any way. Unfortunately this kind of world means death to me, I have never been a 'little woman' happy only with the four wall I live in, it's
not enough for me, but sadly I'm not really fit enough anyway.

I went to the physio again today and she has suggested that when I next see my GP (which is next Monday) I mention to him about being referred to
see a neurologist. The neck pain has improved slightly but not as she would have expected, even the last cons. letter said - 'I am somewhat surprised after all the intervention
that the pain persists'. So even she is thinking the way I am. I've never had a a pain anywhere that has lasted this long, especially with all the intervention by me never mind the physio and the drugs.
Only my RA ha given me such problems in the past.

I'm still very close to ditching everything and telling them all to get lost.

I bet you're sorry you asked now! Smile

Gogs xx


Jane.
#79 Posted : Thursday, February 20, 2014 11:02:21 PM Quote
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Joined: 5/2/2012
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Location: where the sun always shines :o
Hello Gogs

You are doing a tremendous job looking after your hubby (May not seem it, but you are)!Love
Just thinking, can't you get some respite via dementia charity/help the aged/social services?
My grandad looked after my nan with dementia until his sudden death - he kept so much from the family, we wished he was up front and honest with the family so we could tame the helm.
My point is: do you have family members for support and respite/giving you a break?

Citizens advice: can they not point you in the direction of charity/help?

You are dealing with a lot and your health on top, please seek help for you & your hubby.

Keep smiling, you are a fantastic lady with a lovely caring heart.Love Wub
Jane
XXXX
gogs
#80 Posted : Thursday, February 20, 2014 11:06:04 PM Quote
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Location: Cheshire
Many thanks Jane.

Since my 'crisis' a couple of weeks ago, and thanks to the help and adcise from other members I have
made contact with Age Uk, Carers assoc. and will talk with my GP on Monday, but the energy rquired to do
all this is more than I have so I end up feling even worse on some days!

Gogs
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